TIC-CON25
June 20-22, 2025
The Tourette Association of America welcomes you to the world’s largest conference focused on Tourette Syndrome and other Tic Disorders! We are pleased to offer free registration for this year’s virtual conference.
The Tourette Association of America welcomes you to the world’s largest conference focused on Tourette Syndrome and other Tic Disorders! We are pleased to offer free registration for this year’s virtual conference.
This transformative event is designed specifically for the community of people impacted by TS, other Tic Disorders, and associated conditions and the medical providers and researchers who support them.
TIC-CON offers a unique opportunity to learn alongside individuals who share your experience! This conference is the perfect weekend for learning, connecting, and fun. You’ll gain new skills, explore new research and treatment options, and make friends and connections that will last a lifetime.
June 20, 2025 10:00 am
to
11:00 am
Stress is known to make it harder for people with TS to suppress their tics. However, little is known about the mechanisms that cause this loss of control. A brain pathway linking key stress systems with the brain's action control circulatory has been discovered. Through investigation of this pathway in mouse models relevant to TS, we have discovered evidence supporting the potential role of this pathway in stress-induced exacerbation of repetitive behaviors. These findings will allow further investigation into avenues of treatment to improve symptom control during stress.
Aidan Price, PhD
Aidan is a 3rd year PhD Student at the University of Newcastle in Australia. He completed his Bachelor of Biomedical Science (Honours) at the University of Newcastle in 2022. Aidan’s 4th year Honours thesis work focused on investigating how stress interacts with repetitive behaviors in neuropsychiatric disorders, a project funded by the TAA Young Investigator Award to his supervisor Dr. Elizabeth Manning.
Following Honours, Aidan was awarded a summer scholarship to continue this work, after which he was awarded an Australian Government Research Training Program Scholarship and began his PhD aiming to further extend the work done in Honours through the use of animal models of OCD and TS.
He presented preliminary work from his PhD thesis at TIC-CON24 in Dallas. Aidan works within the Behavioral Neuroscience Group, led by Dr. Elizabeth Manning, Dr. Erin Campbell, and Prof. Chris Dayas.
June 20, 2025 10:00 am
to
11:00 am
Although behavior therapy is recognized as a first-line intervention for TS and tic disorders, not all patients respond to this evidence-based treatment. Limited distress tolerance may be one factor that impedes Comprehensive Behavioral Intervention for Tics (CBIT) outcomes. This study is the first to examine the relationship between distress tolerance and tic severity among adults with TS, and investigates the effects of a brief distress tolerance skills training intervention. Preliminary findings suggest that participants with TS experienced improvements in distress tolerance and tic severity at post-treatment. This line of work has the potential to improve treatment outcomes for patients with TS.
Kesley Ramsey, PhD
Kesley Ramsey, Ph.D., is an assistant professor at the Center for Developmental Behavioral Health at Kennedy Krieger Institute and the department of psychiatry at Johns Hopkins University School of Medicine. Dr. Ramsey is a licensed clinical psychologist, delivering evidence-based assessment and treatment to children, adolescents, young adults, and their families managing Tic Disorders and other co-occurring mental health conditions at the Center for Developmental Behavioral Health at Kennedy Krieger Institute.
She currently conducts clinical research at Kennedy Krieger Institute and the Johns Hopkins Center for OCD, Anxiety, and Related Disorders for Children (COACH). Her research centers on investigating the mechanisms that underlie the etiology, maintenance, and treatment of neuropsychiatric conditions, specifically TS, obsessive-compulsive related disorders (OCRD), and anxiety disorders. She currently serves as an independent evaluator for an R01 clinical trial investigating a mindfulness-based intervention for adults with tics.
Dr. Ramsey has received national recognition for her innovative research, including the Tourette Association of America’s Young Investigator Award and the American Psychological Association’s Society for Clinical Child and Adolescent Psychology (SCCAP; Division 53) Future Directions Launch Award.
June 20, 2025 11:00 am
to
12:00 pm
Although tic disorders such as TS can affect how children feel or function, approximately half of tic disorders are not diagnosed. Currently, screening for tics and tic disorders is not routine in children. However, screening for tics and tic disorders may improve earlier diagnosis of tics and tic disorders, which may improve outcomes. This session will describe early results of an ongoing study that evaluates how well a brief screening questionnaire works to identify children with and without tics. This information will help us to create a path forward for tic screening in children.
Jennifer Vermillion, MD
Jennifer Vermillion, MD, is a board-certified child neurologist and an assistant professor of neurology and pediatrics at the University of Rochester (NY), where she is also the director of the pediatric movement disorders fellowship and co-director of the TAA Center of Excellence at the University of Rochester.
Dr. Vermillion received her BS in molecular and cellular biology from Vanderbilt University and her MD from the University of Rochester. She completed residency training in child neurology at the University of Rochester, where she stayed on to complete a dual fellowship in pediatric movement disorders and experimental therapeutics. She joined the faculty at the University of Rochester in 2019.
Dr. Vermillion has an active research program focused on Tic Disorders and co-occurring conditions in youth. She has active research projects assessing anxiety symptoms and rage attacks in Tic Disorders, as well as testing new screening instruments to improve the detection of Tic Disorders. Clinically, she specializes in pediatric movement disorders with a special interest in TS.
Dr. Vermillion previously served on the Scientific Program Committee at the Congress of Neurological Surgeons (CNS) and as a member on the editorial board for the Resident and Fellow Section of the Neurology journal.
Naomi Taggart, MA
Naiomi Taggart, MA, is a clinical research specialist in the division of child neurology at the University of Rochester Medical Center. Naomi received both her BA and MA in biological sciences from Binghamton University. Throughout her undergraduate career, she did research for two labs that focused on erythopoiesis and the transmission of cytokines through breast milk from mother to child. In her current role, she is the human subjects specialist on a CDC-funded Prevention Research Center Special Interest Project focused on improving identification of tics and Tic Disorders in children.
June 20, 2025 12:00 pm
to
01:00 pm
'Parents Living Well with Tics' is an innovative online training group designed to support caregivers of children with tic disorders. Parents and guardians often face high stress and uncertainty, yet their perceptions and knowledge significantly impact their child's well-being. This study evaluates the program's feasibility and its impact on parental stress, a child's tic-related impairment, and family functioning. Findings reveal high satisfaction, increased knowledge, and improved outcomes. Presenters will highlight the importance of caregiver support and provide insights into a promising intervention that empowers parents and guardians to better understand and manage their child's condition.
Noa Benaroya-Milshtein, MD, PhD
Dr. Noa Benaroya-Milstein is a distinguished child and adolescent psychiatrist and the director of the child psychiatric division at Schneider Children’s Medical Center of Israel, where she also serves as the head of the Tourette Clinic. Additionally, she is a senior lecturer at the Tel Aviv University Faculty of Medicine.
Dr. Benaroya-Milstein is actively involved in local and multicenter studies, specializing in TS and its associated disorders. She earned both her M.D. and Ph.D. through Tel Aviv University’s excellence program, with a focus on PsychoNeuroImmunology. Her contributions to hemato-oncology have earned her numerous awards and grants.
Beyond her roles in the psychiatric department, she leads a unique psychopharmacology research team dedicated to serving the hemato-oncology ward, demonstrating her commitment to advancing medical science and psychiatric patient care.
Dana Feldman - Sadeh, PhD
Dr. Dana Feldman-Sadeh (PhD) is a supervising clinical psychologist and co-director of the Neuropsychiatric Clinic for Tourette Syndrome and Tic Disorders at Schneider Children’s Medical Center’s Psychological Medicine outpatient unit. In her PhD dissertation, Dana researched suicidality in youth and was the Israeli coordinator of a 7th framework, European multi-center study called SEYLE.
In addition to her clinical practice, Dana develops research and mentors doctoral students during their dissertations as part of her work.
June 20, 2025 01:00 pm
to
02:00 pm
Session 1 (15 minutes): Lessons Learned from Pilot Online Professional Development Education Course
Heather Martin, OTD, OTR/L
Research has long shown that children and adolescents living with tic disorders experience difficulties in school. Recognizing these challenges, in 2023 the University of Florida Health TAA Center of Excellence created a free, virtual professional development program for educators with design and content created by educational subject matter experts. The response has been incredible with remarkably positive feedback on course content and learning. Additionally, helpful feedback was obtained to better understand the learning needs of educators in this area. The goal of this session is to analyze feedback and learn from this course to collaborate with researchers and educators on ways to maximize the impact of this course moving forward and increase impact on students with TS.
Session 2 (15 minutes): Creating and Assessing Scalable and Novel Treatment Technologies for Building Tic Awareness Using Computer Vision and Machine Learning
Alexandria Chang, BA; Aimee Cho
Although behavior therapy is the front-line treatment for TS, many patients struggle with tic awareness - a fundamental treatment component linked to positive behavior therapy outcomes. Advancements in computer vision and machine learning have the potential to foster tic awareness. We developed protocols to train raters in reliable annotation of tic videos. These annotated videos were used to train computer vision and machine learning models to detect tics using state-of-the-art methods. It was found that training protocols demonstrated excellent rater reliability, and the algorithm performed comparably across time, participants, and activities - demonstrating initial success of this tic detection algorithm.
Session 3 (15 minutes): Parent Emotion Socialization in Adolescents with Tourette Syndrome: Associations with Psychological Symptoms
Abigail Snow, BA
Few studies have examined the role of parenting in adolescents with TS. Despite comorbid psychological symptoms being a stronger predictor of quality of life than tic severity, current treatment strategies primarily focus on tic management. As such, there remains an urgent clinical need to identify and treat risk factors for psychological issues in adolescents with TS to improve quality of life. The current study examined emotion socialization behaviors and adolescent psychological symptoms in families impacted by TS. Findings highlight differential impact parenting behaviors can have on adolescent psychological symptoms and point to a novel target for intervention.
Heather Simpson-Martin, OTD, OTR/L
Heather Simpson-Martin graduated with a B.S. in exercise and sport science in 2007 and her master’s in occupational therapy (OT) in 2009, both from the University of Florida. She obtained a post-professional clinical doctorate from the University of St. Augustine for Health Sciences in 2017.
Since the completion of graduate school, she has worked in a variety of settings, including outpatient neurology, inpatient physical rehabilitation, and pediatric rehab. She has also previously served as an adjunct lecturer at the University of Florida OT program.
Currently, she works at the University of Florida Health Fixel Institute for Neurological Diseases. In addition to her role as a staff therapist, she serves as clinic coordinator for the TAA Center of Excellence and the clinical interview lead in the PGENEs research lab studying the genetics of tics.
In 2012, Heather received specialized training in Comprehensive Behavioral Intervention for Tics (CBIT), becoming one of the first OTs in the country trained in this program. Since then, she has been recognized for her national expertise by becoming part of the national TAA BTI-TS faculty and training providers across the country. Heather has published multiple papers and presented nationally on the topic, focusing on increasing OTs' presence in treating these disorders.
Alexandria Chang
Alexandria Chang graduated from Johns Hopkins University with two bachelor of arts degrees in psychological and brain sciences and public health studies. She currently works at the Johns Hopkins Center for OCD, Anxiety, and Related Disorders for Children as a research program coordinator with Dr. Joseph McGuire.
Her main research interests focus on developing, testing, and disseminating novel and scalable treatments, with an emphasis on TS, OCD, anxiety, and related disorders. She is also interested in synergizing digital technology and psychophysiology using evidence-based practice to promote accessible mental health solutions.
Furthermore, she is passionate about elucidating the complex psychopathology of aforementioned psychiatric conditions using ambulatory assessment and network analysis.
Aimee Cho
Aimee Cho is a recent graduate of Johns Hopkins University with a bachelor of arts degree in psychology. She worked as a research assistant at the Johns Hopkins Center for OCD, Anxiety, and Related Disorders for Children under the mentorship of Dr. Joseph McGuire.
Her interests lie in testing and designing novel assessment and treatment tools for youth with TS, anxiety, and OCD. She is also passionate about making psychotherapy more accessible and effective for children, especially through the synthesis of digital technology and personalized interventions.
Abigail Snow
Abigail Snow, BA, is a second-year clinical psychology PhD student at Vanderbilt University. After completing her BA in psychology at Vanderbilt University, she conducted post-baccalaureate research at Howard University and Vanderbilt University Medical Center before beginning graduate school in Vanderbilt University’s clinical science psychology PhD program.
Broadly, her research interests are centered on parenting behaviors and neuropsychological dimensions that impact emotion regulation in adolescents. She currently has the privilege of investigating these interests in the context of adolescents with TS while she studies in the Watson Lab at Vanderbilt University Medical Center under the direction of Principal Investigator and mentor Kelly Watson, PhD.
June 20, 2025 02:00 pm
to
03:00 pm
While under-recognized sensory symptoms of TS and other chronic tic disorders (CTD) are prevalent and distressing, the most pervasive sensory symptom in CTD is sensory over-responsivity (SOR). SOR is defined as heightened awareness of and/or a behavioral response to commonplace environmental stimuli, such as noise from appliances and clothing seams rubbing against skin. More than 50% of children and 80% of adults with CTD report SOR, and across the lifespan, greater SOR is associated with more severe tics and psychiatric symptoms and worse quality of life. This session will examine the clinical significance and potential neural mechanisms of SOR in CTD.
David Issacs, MD, MPH
David Isaacs, MD, MPH, is a movement disorders neurologist and co-director of the Vanderbilt Center for Tourette Syndrome and Other Tic Disorders, a TAA Center of Excellence. He provides clinical care to children, adolescents, and adults with TS and other Tic Disorders. His research examines the clinical impact and neurophysiologic correlates of non-motor features of TS.
June 20, 2025 03:00 pm
to
04:00 pm
A significant barrier for tic disorder research is the recruitment of individuals with tic disorder into research studies. Because tic disorders are thought to be influenced by multiple genetic factors and often co-occur with additional psychiatric diagnoses, large studies are necessary to uncover the causal genetic mechanisms. This research utilizes electronic health records to address these issues by:
1. Identifying comprehensive and longitudinal comorbidity patterns of individuals with tic disorders.
2. Using tic disorders comorbidity patterns to identify individuals what may increase the power of tic disorders genetic studies.
Tyne Miller-Fleming, PhD
Tyne W. Miller-Fleming, PhD, is a Research Instructor in the division of genetic medicine at Vanderbilt University Medical Center. She was born and raised in southern Indiana before attending Purdue University for her undergraduate studies in biology.
Tyne received her doctorate in neuroscience from Vanderbilt University in 2016, where she studied synapse formation in the model system C. elegans. For her postdoctoral studies, Tyne expanded her training to a much more complex model system—humans! Under the guidance of Nancy J. Cox and Lea K. Davis, Tyne has spent the last eight years studying population genetics by combining electronic health record information with genotype data from Vanderbilt’s biobank, BioVU.
Tyne’s research is specifically focused on using large-scale databases linked to genetic data to study neurodevelopmental disorders, rare diseases, and blood cell traits.
When Tyne is away from work, she enjoys traveling and spending time with her family.
June 20, 2025 04:00 pm
to
05:00 pm
Stigma is a powerful yet often overlooked factor affecting the health and well-being of adults with TS. This session shares findings from the Tourette Association of America's 2022 Impact Survey, demonstrating how tic-related stigma is linked to increased mental health challenges, tic-related pain, sleep disturbances, substance use, and medication non-adherence. Using a 12-item stigma index, we highlight the far-reaching effects of stigma on behavioral health. Attendees will gain a deeper understanding of these challenges and explore ways to reduce stigma, improve healthcare engagement, and enhance the quality of life for individuals living with TS.
Chengshi Shiu, PhD-GStat, MS, LSW
Dr. Chengshi Shiu is an assistant research scientist at the University of California, Los Angeles (UCLA) School of Nursing, holding a Ph.D. in social service administration from the University of Chicago, along with master's degrees in social work and biostatistics.
Dr. Shiu’s research focuses on psychosocial factors, particularly stigma, that shape health behaviors and mental health outcomes in individuals with chronic conditions and disabilities. Extensive work by Dr. Shiu has examined care engagement and behavioral health among individuals with HIV in the U.S. and developing Asia, as well as those with intellectual and developmental disabilities.
As a co-principal investigator on multiple NIH- and PCORI-funded studies, Dr. Shiu contributes to advancing stigma research. Recognized for contributions, Dr. Shiu recently received the Young Investigator Award from the Tourette Association of America.
Current work by Dr. Shiu focuses on developing a validated measurement tool to assess tics-related stigma and conducting a one-year longitudinal study examining how stigma influences mental health outcomes in adults with TS.
June 21, 2025 10:00 am
to
11:00 am
Let's come together as one community to begin our day with energy, excitement, and purpose. These opening remarks will set the stage for the next day and a half of connection, inspiration, and discovery. Hear from community leaders, special guests, and our keynote speaker. Grab your morning coffee and start the day with us - this is a session you won't want to miss!
June 21, 2025 01:00 pm
to
02:00 pm
June 21, 2025 04:00 pm
to
05:00 pm
More information coming soon!
June 21, 2025 11:00 am
to
12:00 pm
This session is a brief review of research on children's concepts of what causes illness, both physical/biological and psychological/neuro-developmental. It is the hope that this general review may help in the formulation of developmentally-appropriate explanations of tic disorders for diagnosed children, their siblings, and their peers. Then, we may be able to scaffold interventions (even children's storybooks about TS) to increase understanding of causes such that diagnosed children may be more amenable to treatment, able to educate others, and be better able to advocate for themselves. Their informed siblings and peers may be more positive in their attitudes and interactions with the TS child. We may even have time to read two such storybooks to a child and get their immediate comparative feedback.
Judy Newman, PhD
Dr. Judy Newman has a PhD in developmental psychology and has been a faculty member in human development and family studies/psychological and social sciences at Penn State Abington College since 1977. She was also recently appointed as a faculty member of the bioethics program at University Park and as a faculty affiliate of the Rock Ethics Institute.
Dr. Newman teaches a wide array of lifespan developmental courses, from infancy and early childhood to adult development and aging. She also teaches an ethics course every semester for students who will likely be entering the mental/behavioral health field.
In 2013 and 2022, Dr. Newman co-authored books about the exploitation of children in medical research throughout the 20th century in America.
Dr. Newman’s primary research interest has been the study of children's concept development from a Piagetian perspective: children’s concepts of family, death, and illness. She is currently working on a book about the development of children’s understanding of the causes of various physical and mental/neurobehavioral illnesses.
Dr. Newman was actively involved for decades as a volunteer with various regional and state organizations educating about and advocating for the rights of persons with TS.
June 21, 2025 12:00 pm
to
01:00 pm
More than 1/3 of children with TS also have an OCD diagnosis. Learn about what it is like to live with TS and OCD, gain insight into Tourettic OCD, and discuss how to potentially treat OCD as it relates to TS and other Tic Disorders. Gain insight from both a clinical expert and someone with lived experience.
Jocee Sevilla
Jocee Sevilla, age 25, is a social worker in the mental health field. She enjoys working with children, loves to read, craft, play sports, and be on stage. Jocee has TS and was diagnosed officially when she was 21 years old. She lives with many other chronic and mental health conditions, including POTS, Narcolepsy, OCD, ADHD, and more. She is fascinated by the brain and loves to learn. Jocee is a TAA Rising Leader and education volunteer, as well as a counselor at Camp Twitch and Shout. She enjoys getting involved in the Tourette Community.
Erica Greenberg
Erica Greenbert, MD, is the director of the pediatric psychiatry OCD and tic disorders program at Massachusetts General Hospital in Boston. She is a board-certified child and adolescent psychiatrist and is an instructor in psychiatry at Harvard Medical School. She attended Washington University in St. Louis for her undergraduate studies and received her M.D. from Weill Cornell Medical College, where she graduated Alpha Omega Alpha.
Dr. Greenberg completed her general psychiatry residency at Harvard Longwood Psychiatry, where she served as the administrative chief resident, and she completed her child and adolescent fellowship training at Massachusetts General Hospital/McLean, where she also served as a chief resident.
Dr. Greenberg's primary interests are TS and related disorders including OCD, ADHD, and body-focused repetitive disorders (hair pulling, skin picking). She is a Dupont Warren Fellow and is conducting a clinical trial on tailoring CBIT to youth with both Tic Disorders and ADHD.
June 21, 2025 02:00 pm
to
03:00 pm
Did you know that an estimated 52% of individuals with TS also have ADHD? While TS and ADHD are separate conditions, they share similar neurological roots – both affect the brain's energy and regulation. For example, treating ADHD can increase energy and focus, but for some, it may also intensify tics. Managing both is a delicate balance, and understanding their connection is key. This session will explore how ADHD and TS interact, the challenges of treating both, and how to find strategies that work, empowering you to manage both conditions effectively and confidently.
Lavanya Bhatia
Lavanya Bhatia is a high school junior diagnosed with ADHD and TS who is passionate about empowering neurodiverse teens by sharing her personal experiences. She understands firsthand the challenges of balancing academics, friendships, and extracurricular activities while managing tics and maintaining focus. Her journey has inspired her to advocate for others and provide practical strategies to help teens embrace their neurodiversity with confidence.
Lavanya is an energetic and fun-loving student who enjoys a variety of activities, including tennis, piano, and musical theater. She also competes in speech and debate, where she explores complex social topics through performance and storytelling.
Through her experiences, Lavanya has learned how to balance structure with flexibility, advocate for her needs, and stay on track while embracing her unique strengths. She is excited to share her insights and tools to help other teens navigate their own journeys, build self-confidence, and thrive in both school and life.
Poonam Bhatia, MD
Poonam Bhatia, MD is a pediatric neurologist and movement disorder specialist at Phoenix Children’s Hospital (PCH), where she serves as the medical director of the Tic and Tourette Program, a TAA Center of Excellence. She is deeply committed to advancing care for children with neurological conditions and improving outcomes through clinical research and education.
Dr. Bhatia completed her medical education at Maulana Azad Medical College in Delhi, followed by a pediatric residency and chief residency in Delhi, India. She went onto complete another pediatric residency at Maimonides Medical Center in New York before working briefly as a general pediatrician at Children’s Hospital Los Angeles.
Her passion for pediatric neurology led her to pursue specialized training with a three-year pediatric neurology fellowship at Children’s Hospital of Pittsburgh. She later worked as a Pediatric Neurologist at Akron Children’s Hospital for nearly six years before joining PCH in 2019. In addition to her clinical expertise, Dr. Bhatia is actively involved in resident education and training programs, as well as ongoing clinical research. Outside of work, she enjoys biking, hiking, cooking, practicing meditation, and spending quality time with her family.
June 21, 2025 02:00 pm
to
03:00 pm
Attend a revealing session on navigating school with TS. From private school and homeschool co-ops to public and online high school, these presenters have tested multiple paths. We will explore parental challenges and discuss how tics, stress, accommodations, and social dynamics shaped their journey. Rooted in real experience, these presenters will deliver practical tips for neurodiverse families. Learn what clicked, what flopped, and bring your questions to this session.
John Glisson
John Glisson is a software engineer and passionate advocate for families navigating TS. As leader of the TAA Georgia Support Group, he builds community and shares insights drawn from raising his son, Caleb, who lives with TS. John's dedication to supporting neurodiverse families stems from his hands-on experience and commitment to fostering resilience and understanding within the TS community.
Caleb Glisson
Caleb Glisson, 17, is a high school student managing TS and a 2023 TAA Youth Ambassador. A veteran camper at Camp Twitch & Shout and an avid Pokemon trading card game competitor and YouTuber, Caleb enjoys fun and supportive communities. He also trained his service dog, Hallie, to assist with TS challenges. Caleb's experiences fuel his commitment to support peers facing similar hurdles.
June 21, 2025 03:00 pm
to
04:00 pm
The TS and Tic Disorder community often face misunderstanding, stigma, and barriers to accessibility. In this session, a senior high school student with TS, her mother, and the co-founder of Atlas Assistance Dogs, will provide insight into overcoming challenges in school, sports, summer camps, and public spaces—where individuals with tics often face judgment and exclusion. Gain practical tools to advocate for yourself or for your child, especially in the face of school resistance and social misconceptions. Additionally, learn about the amazing role that a service dog can play for individuals with TS both in symptom management and advocacy.
Victoria Kucel
Victoria is a dedicated mother of two teenagers and a seasoned high school science educator with a unique perspective on TS. Her journey with TS began when her eldest child was diagnosed at age three. Now, her vibrant 17-year-old junior in high school, Indi, has not only displayed remarkable resilience but has also become a profound source of inspiration for Victoria.
Having traversed the globe with her husband for the past 24 years, Victoria brings a wealth of cultural experiences to her role. After living on five continents, Washington has become their cherished base, providing stability amid their diverse adventures.
In 2021, Victoria faced the realization that the Comprehensive Behavioral Intervention for Tics (CBIT) was insufficient to manage Indi's TS. This prompted her and her husband to embark on a thorough investigation, leading to the introduction of Otto, a mini-Bernedoodle, into their lives. Otto has not only become a beloved companion, but a vital part of their journey in navigating TS with resilience and compassion.
Victoria's story is one of dedication, adaptability, and the transformative power of embracing new possibilities and a solid support team in the face of challenges.
Jennifer Kolar
Jennifer is the founding board member and current president of Atlas Assistance Dogs, a nonprofit organization dedicated to partnering with people with disabilities to train their dogs as service animals. Over her seven-year tenure, Jennifer has been instrumental in developing programs that support individuals with disabilities and their canine companions. She has also played a key role in creating professional training offerings for service dog trainers.
Before her work with Atlas, Jennifer co-founded and managed a for-profit business specializing in owner-based service dog training. She also helped establish and oversee a nonprofit training program, where she managed puppy raisers, dog trainer education, kennel operations, and advanced task training for multiple service dogs-in-training at once.
Jennifer holds a variety of certifications, including Karen Pryor Academy Certified Training Partner (KPA CTP), Atlas Certified Trainer (Atlas CT), Certified Professional Dog Trainer (CPDT-KA), Certified AKC Canine Good Citizen Evaluator, Certified Diabetes Alert Dog Trainer, Certified Behavior Adjustment Training Instructor (CBATI), and Certified Peer Supporter. She earned a BS in Applied Mathematics in Engineering and an MS in Astrophysical, Planetary, and Atmospheric Sciences from the University of Colorado at Boulder.
Jennifer has shared her expertise at numerous conferences, including ClickerExpo, the Association of Migraine Disorders, TIC-CON, the Washington Epilepsy Foundation, Abilities Expo, the Association of Pet Dog Trainers, Fenzi Academy, and the Pet Professional Guild.
Residing in Seattle, Washington, Jennifer shares her home with her service dog, Theodore, and a rotating cast of visiting dogs, much to the chagrin of her partner and their two cats.
Indi Kucel
Indi,17, a high school junior, has faced the challenges of living with TS since the age of one, receiving an official diagnosis at three. Alongside TS, Indi has been diagnosed with ADHD, OCD, FND, Autism, and general anxiety disorder. Despite these challenges, Indi excels academically, taking pride in her school performance.
Beyond academics, Indi is a multifaceted individual - a poet, singer, and athlete. Having coped with TS throughout her life, Indi developed various strategies to manage tics. However, as the tics became more intense with age, traditional methods like CBIT proved insufficient. Seeking alternative solutions led Indi to the introduction of Otto, a miniature Bernedoodle that Indi worked to train as her service dog.
Otto has become an invaluable companion, empowering Indi to explore their potential and transform challenges into determination and grit. With this newfound support, Indi has achieved remarkable feats and remains determined as they navigate their journey to university and beyond.
June 21, 2025 11:00 am
to
12:00 pm
TS has been known for over 100 years, but most of the studies of TS and tics have been focused on the experiences of men. The assumption that men’s physiology and experience are like women’s seems on somewhat unstable ground. Clinical under identification persists and likely contributes to lower attention given to this population. This session highlights some of the current deficits in our knowledge of the experiences and etiology of TS and other Tic Disorders in women, the potential impacts this has on their health and well-being, and future directions for research. The goal is to increase the knowledge of professionals to aid women with TS and to increase the confidence of women with TS to advocate and communicate their needs. We will discuss current literature and professional knowledge, highlight presently known gaps, and encourage the audience to ask questions and point out additional areas of present ignorance.
Charles E. Galyon, PhD
In addition to being diagnosed with TS at the age of five, Charles E. Galyon has worked professionally with TS and Tic Disorders for approximately nine years as a psychologist. Along with his therapeutic work, he also trains other professionals on how to work effectively with individuals who have TS and Tic Disorders. Dr. Galyon consults with professionals and the community to promote public knowledge and understanding of these conditions. He facilitates an online support group for the TAA and is an active participant in national and state professional consultation groups focused on TS and Tic Disorders.
Currently, Dr. Galyon is involved in a research project aimed at improving professional knowledge and understanding of the unique experiences of women with TS.
Kelly Ann Cartwright, PsyD
Kelly Ann Cartwright is a clinical psychologist, a certified CBIT therapist, and a trainer and clinical supervisor in the Cognitive Psychophysiological (CoPs) Intervention for Tics, an empirically-supported, effective therapy for tics developed by the eminent Kieron O’Connor in her home town of Montreal, Canada. In 2022, Dr. Cartwright founded the Lakeshore Psychology and Wellness Center, a small, multidisciplinary clinic offering a neurodiversity-affirming approach, gender-affirming care, and various services for children, teens, and adults with tics and their families.
June 21, 2025 12:00 pm
to
01:00 pm
Patients with repetitive behaviors can present with symptoms including tics, stereotyped movements such as trichotillomania, and compulsions. Those with TS may show other presentations besides tics, given that other mental health conditions such as anxiety disorders, ADHD, or OCD are often co-occurring with TS. Understanding differential diagnoses and the ability to properly recognize and classify repetitive behaviors can improve accurate diagnosis and management. This knowledge is especially important for those who care for patients and their families affected by these conditions as it can lead to improved outcomes and ensure they are receiving evidence-based treatments.
Jasleen Singh, MD
Dr. Singh is an assistant professor at Northwestern University in Chicago, Illinois, and currently works at Ann and Robert H. Lurie Children’s Hospital in an outpatient setting. She serves as the lead psychiatrist for the Children’s OCD/Anxiety Spectrum & Tic Disorders (COAST) program. Dr. Singh completed her child and adolescent psychiatry fellowship at Northwestern University/Lurie Children’s Hospital, attended residency at Rosalind Franklin University, and earned her medical degree at Loyola University Chicago.
Her professional journey in psychiatry is characterized by a steadfast commitment to patient care, mentorship, and leadership. In her current role as lead psychiatrist of the COAST program, Dr. Singh's research interests focus on Tic Disorders, OCD, related disorders, and anxiety disorders. As a member of the TAA Center of Excellence at Ann and Robert H. Lurie Children’s Hospital, she aims to build on her previous research experiences to advance the study of Tic Disorders, including TS.
Joanna Blackburn, MD
Dr. Blackburn is an associate professor in pediatrics (neurology and epilepsy) at Northwestern Feinberg School of Medicine and an attending child neurologist at Ann & Robert H. Lurie Children’s Hospital of Chicago. She is a fellowship-trained pediatric movement disorders specialist and leads the pediatric movement disorders program at Lurie Children’s Hospital. Dr. Blackburn is also the director of the TAA Center of Excellence at Lurie Children’s Hospital.
She has published several articles in medical literature, contributed book chapters on pediatric movement disorders, and has given talks at both local and national levels. In addition to her clinical practice, Dr. Blackburn serves as the program director for the child neurology residency program and is deeply committed to medical education.
Elizabeth Moroney, PhD
Dr. Moroney is a clinical psychologist at Lurie Children’s Hospital and an Assistant Professor of Psychiatry at Northwestern Feinberg School of Medicine. She provides clinical services to children with OCD, Tic Disorders, anxiety, and related conditions through Lurie Children’s OCD/Anxiety Spectrum and Tic Disorders (COAST) program. In addition to her clinical work, Dr. Moroney conducts research focused on these conditions.
She is passionate about increasing access to evidence-based treatments for children and families. Her research explores innovative methods of adapting and delivering these treatments to reach broader audiences. Dr. Moroney completed her graduate training at UCLA under Dr. Steve Lee, her predoctoral clinical internship at Stanford Children’s Hospital and the Children’s Health Council in the Bay Area, and a two-year postdoctoral fellowship in pediatric OCD, Tic Disorders, and anxiety at Weill Cornell Medicine under Dr. Avital Falk.
Dr. Moroney is excited to present at TIC-CON again this year!
June 21, 2025 02:00 pm
to
03:00 pm
While pediatric tic disorders are a common, well-studied phenomenon, the COVID-19 pandemic created an epidemic of functional neurologic tics. As children presented to clinic, publications could hardly keep up. We will explore the evolution of the epidemic, the series of publications as they emerged, and discuss co-occurring conditions and the role of the Occupational Therapist
Chelsey Stillman, MPAS PA-C
Chelsey Stillman, PA-C is an assistant professor of pediatrics and neurology at the University of Colorado, as well as a full-time clinician at Children’s Hospital Colorado.
In 2012, she created the Seizure Safety School, a free educational quarterly seminar for new and recently diagnosed patients with epilepsy. The Seizure Safety School is still running 12 years later, entirely unfunded and managed through volunteer time. For her work, she received the Innovative Practice Award for the Seizure Safety School in 2013 from the Academy of Child Neurology Nurses.
Chelsey has volunteered at 15 Epilepsy Foundation Colorado camps for children and has served on the Camp Planning Committee for over 10 years. In 2016, she was honored with the Dalice Hertzberg Award for her volunteer efforts and received a Teaching Recognition from the Section of Neurology. She has been a member of the Epilepsy Professional Board of Colorado and Wyoming since 2012.
In 2023, Chelsey was promoted from senior instructor to assistant professor. In September 2023, she accepted the position of advanced practice lead for neurology at Children’s Hospital Colorado. She is also the co-director and creator of the Pediatric to Adult Epilepsy Transition Clinic, which was awarded a multi-million-dollar UPL grant from the state of Colorado for the Impact Project in January 2024. In May 2024, she received the Outstanding Service Award for medical staff at Children’s Hospital.
In late 2024, the Integrative Tic Clinic at Children’s Hospital Colorado was recognized as a Center of Excellence.
Chelsey received her undergraduate degrees from the University of Colorado in integrative physiology and Spanish. She completed her master’s degree in child health physician assistant studies in 2010 and has been a full-time clinician in Neurology since then.
Kate Shanovich, OTR/L
Kate Shanovich, OTR/L is a licensed occupational therapist at Children’s Hospital Colorado, where she serves as a full-time clinician and team member of the Integrated Tic Clinic. She specializes in sensory integration, feeding challenges, TS and other Tic Disorders, constipation, and Functional Neurological Disorders (FND). In 2021, Kate earned a certification in Comprehensive Behavioral Intervention for Tics (CBIT), further enhancing her expertise in treating Tic Disorders through evidence-based interventions.
June 21, 2025 03:00 pm
to
04:00 pm
The University of South Florida, a TAA Center of Excellence, often welcomes patients referred after long, discouraging journeys of trial and error with medications to treat tics. This session aims to inspire hope by providing a comprehensive overview of historical, current, and future treatments for TS and other Tic Disorders. We'll also discuss medications for co-occurring conditions including anxiety and OCD and nonpharmacological options such as CBIT.
William Hudson, MD, MS, MA
Dr. William Hudson obtained his bachelor’s of science at Duke University before pursuing postgraduate studies in organic chemistry at The Scripps Research Institute – Scripps Florida, earning a master’s of arts in the discipline. He then returned his focus back to clinical medicine, obtaining a special master’s in physiology at Georgetown University, before settling in the Tampa Bay area to obtain his doctorate of medicine, psychiatry presidency training, and child and adolescent psychiatry fellowship, all at the University of South Florida.
Dr. Hudson is now a board certified child and adolescent psychiatrist and an assistant professor of pediatrics at the University of South Florida Morsani College of Medicine, where he serves as the medical director of the Rothman Center of Pediatric Neuropsychiatry.
In addition to treating the patients of today and training the clinicians of tomorrow, Dr. Hudson is a principal investigator for several investigational medications, including novel treatments for TS.
Sindhu Saba, DO, MPH
Dr. Sindhu Saba is a child and adolescent psychiatry fellow at the University of South Florida. Raised in Tampa, she completed her bachelor's of science at the University of South Florida with a major in biology and minor in psychology.
She then obtained a masters in public health with a concentration in global health from Boston University. Her public health work included working with several nonprofit organizations abroad, providing care to children and adolescents with HIV/AIDS.
She then went on to complete her medical training at West Virginia School of Osteopathic Medicine. Subsequently, she completed her general adult psychiatry residency at Adena Health in Ohio, where she served as chief resident.
She then returned home to Tampa to pursue her child and adolescent psychiatry fellowship. She has a strong interest in Obsessive Compulsive Disorder, TS, Mood Disorders, and Integrative Psychiatry. She continues to further her knowledge in different topics in psychiatry with a commitment towards providing high quality evidence-based care.
June 21, 2025 03:00 pm
to
04:00 pm
Primary care providers play an important role in helping children and families optimize their habits. This session aims to provide primary care physicians and advanced practice providers with tips on how to manage lifestyle habits in kids with tics using positive guidance and a strength-based approach. We will discuss specific tips for optimizing nutrition, physical activity, stress management, sleep, and screen time for kids with tics.
Allison Antalek
My name is Allison Antalek and I am a movement disorders nurse practitioner at Stanford Medicine Children’s Health. Working with children has been my life’s passion. I have always had a profound professional curiosity for the developmental process and enjoy providing families with the tools to raise healthy, happy children. I have worn many hats over the course of my career, with over 15 years of experience working professionally with children as a pediatric nurse practitioner, registered nurse, early childhood educator, public health professional, and child life volunteer.
I completed my training as a nurse practitioner at Emory University and have an additional graduate degree in community public health from the University of California, Los Angeles. I am obsessed with the California coast and enjoy hiking, reading, and spending time with my husband and golden doodle.
June 21, 2025 11:00 am
to
12:00 pm
The presenter will share her personal experience growing up and going to school with TS. She will use this as a springboard to explore on the challenges she faced as a student and now as an educator, and to share the lessons she has learned along the way. The presenter will provide educators and families with best practices for students with TS, including accommodations and potential school services.
Nicky Bohm
Nicky Bohm has TS and has been a passionate and motivating behavioral specialist and teacher since 1999. She has given presentations previously for the Tourette Association of America, Minnesota Association of Community Mental Health Programs, and
Children's Hospital in Minnesota.
June 21, 2025 12:00 pm
to
01:00 pm
Join a seasoned educator with 17 years of teaching experience, and a lifelong journey with TS, as they provide an authentic, insightful look into life in the classroom from both sides of the desk. This session explores the challenges and triumphs of navigating school as a student with TS and later returning as a teacher with the same condition. Learn how lived experience shapes classroom culture, supports inclusion, and challenges stigma. Whether you’re an educator, parent, or advocate, this unique perspective offers valuable strategies and heartfelt reflections that empower and inspire.
Brian Burns
Brian was diagnosed with TS at age 11 and has been living with constant tics for the past 33 years. He has an undergraduate degree in middle childhood education from Cleveland State University, a master's degree in educational technology from Arizona State University and has worked in educational settings for 17 years.
June 21, 2025 11:00 am
to
12:00 pm
Living with TS is a challenge, but it does not define who we are. In this powerful and inspiring session, Marine veteran, entrepreneur, and single father, Frank Manteau, shares his journey of overcoming obstacles, managing tics, and thriving in both life and business. From growing up misunderstood in the Gen X era to recognizing TS in his daughter, Frank discusses real-life coping strategies, resilience, and self-acceptance. This session will empower attendees to own their story, find what works for them, and press forward, no matter what. TS is part of us, but it does NOT define us.
Frank Manteau
Frank Manteau is a Marine veteran, entrepreneur, mentor, and single father who has lived with TS for over 35 years. Diagnosed as a child in the Gen X era, he grew up in a time when TS was misunderstood, often facing bullying and societal misconception. Despite these challenges, he enlisted in the United States Marine Corps just six days after graduating high school, serving 7 ½ years with unwavering resilience.
After the military, Frank became a successful entrepreneur and business leader. He also serves as a mentor with Warrior Rising, helping fellow veterans transition into entrepreneurship.
As a single father, Frank recognizes the signs of TS in his daughter and is committed to ensuring she grows up empowered, knowing her condition does not define her. In his presentation, Frank shares his journey of overcoming adversity, building resilience, and learning to press forward—no matter what. His powerful message is designed to inspire, educate, and equip others with the tools to navigate life with TS and thrive.
June 21, 2025 12:00 pm
to
01:00 pm
The isolation many people with TS feel is real. For many other people who came of age long before the TAA and its welcoming community were available, folks who may not even be officially diagnosed, this isolation is exacerbated by a deep sense of shame and embarrassment. This panel features four 50+ adults with TS who came of age before advances were made in research and public awareness. How do we encourage more adults to step forward and seek a diagnosis, to join the TS community, and find the care and support they need?
Kyle Semmel
K.E. Semmel has translated more than a dozen books from Danish. His essays have been published in HuffPost, Lithub, The Millions, Electric Literature, Washington Post, The Writer's Chronicle, and elsewhere. The Book of Losman, his debut novel, is a speculative fiction about a literary translator in Copenhagen with TS. His Substack is Bright Boy: A Tourette's Life. More at kesemmel.com.
James Johnson
James Johnson is a retired web and database developer in Southern California who was diagnosed with TS in 2024. As a peer mentor with the TAA's Southern California chapter, he leverages his communication skills and life experiences to support others with TS, especially older adults. He writes about his new challenges and experiences on his Substack, James with Tourette's.
Vernell Jones
Vernell Jones is a wife, mother, a friend to many, and business owner of Problem Solved Communications, LLC. One of her missions and passions is teaching healthcare professionals how to treat chronically ill patients. Vernell also has TS. She went undiagnosed as a child and consequently suffered as an adult for years, which resulted in misperceptions by family, friends, and even doctors, which is why she is now an advocate for the thousands of men, women and children with TS today. She has faced adversity throughout her career and received stares and comments from strangers in public, but she still faces every day with a positive and hopeful attitude and a mission to educate. Vernell is a licensed insurance agent and Broker, Notary Public, Remote Online Notary, business owner, certified web designer, photographer, former owner of Jones Photo, Copy, Fax & Print, trainer, and business consultant. Vernell graduated from the University of Phoenix in 2008. Vernell worked for several large nonprofit organizations: AARP, National Dairy Board, and the American Diabetes Association, usually working in the communications or graphics departments. She spent time with Campaigns and Elections Magazine (sales), and her youngest years in the US Government with the Department of Defense at the Pentagon with Navy, USAF, DODIG, and NOS.
Jackie Nau
Jackie Nau has lived with TS, OCD, ADHD, and anxiety for over 50 years. She is a former project coordinator for the LEND program at the University of Iowa Center for Disabilities and Development. Jackie speaks about living with TS and comorbidities at schools and colleges. She also serves on the Board of Directors for the Arc of East Central Iowa and helped develop the TAA Adult Task Force.
June 21, 2025 02:00 pm
to
03:00 pm
Whether you're on a journey to understand your condition, motivated to try new treatments, or are curious about something you've heard from a friend or saw online, you're going to encounter people making claims about what scientific research says and does not say about TS. How do you make sense of it all? In this session, seasoned TS researchers help you take the first step toward feeling more comfortable and confident. This session will use real-life examples to decipher TS research, explain how to distinguish sound science from misleading claims, lead an interactive exercise, and share resources for further exploration.
Matthew Capriotti, PhD
Dr. Matthew Capriotti is a professor of psychology at San José State University and a licensed psychologist. For the past 15 years, he has supported the TS community through clinical service, research, and advocacy.
Dr. Capriotti has published over 70 peer-reviewed journal articles on TS and LGBTQ+ health. Much of this work has focused on developing and testing methods to equitably expand access to CBIT and other TS supports.
Christine Conelea, PhD
Christine Conelea, PhD is an associate professor in the department of psychiatry & behavioral sciences at the University of Minnesota and a licensed clinical psychologist.
Dr. Conelea's research focuses on TS, Tic Disorders, OCD, and anxiety disorders. She is particularly interested in how the brain, environment, and psychosocial factors interact to influence symptoms and treatment outcomes.
Her research integrates behavioral and neuroscience methods, including neuromodulation and brain imaging. Additionally, Dr. Conelea is committed to developing symptom measurement tools, disseminating effective cognitive-behavioral therapies (CBT), and exploring ways to enhance CBT outcomes.
Ellie Jarvie, MSW, LCSW
Ellie Jarvie is an adult with TS who lives in Madison, Wisconsin. She has been actively involved in the TS community since the mid-1980s.
Her motivation for serving on the MnTiC Lab Patient Advisory Board (PAB) is to share the knowledge she has gained from others, along with her own lived and professional experience, to help improve the lives of people with tics.
June 21, 2025 03:00 pm
to
04:00 pm
Competency bias is the tendency to underestimate or overlook someone’s skills and abilities based on assumptions rather than actual performance, often leading to unfair barriers in professional growth. Learn about the impact of competency bias on individuals, especially those with neurodivergent conditions like TS, and gain practical strategies to foster a more inclusive and equitable environment. Equip yourself with the tools to create a confident, diverse, and innovative career path by addressing and mitigating competency bias. Join us to make a positive change and unlock everyone’s true potential.
John Pagliarulo
John is a qualified actuary with over 17 years of experience specializing in property and casualty risks. He advises clients across a range of industries on assessing and quantifying risk, developing strategies to reduce exposure, and optimizing insurance programs. John is currently pursuing an MBA in enterprise risk management at St. John’s University to further enhance his expertise in the field.
Before joining Willis Towers Watson, John held key roles at leading firms including Marsh, Inc., where he served as an actuarial manager and client delivery lead for Fortune 1000 clients in the Northeast. He began his actuarial career at Insurance Services Office (ISO), focusing on commercial property rate-making, and later worked at Milliman as a consulting actuary, where he provided actuarial opinions across all major property and casualty lines.
John holds several professional designations, including Associate of the Casualty Actuarial Society (ACAS), Chartered Property & Casualty Underwriter (CPCU), and Associate in Risk Management (ARM).
June 21, 2025 11:00 am
to
12:00 pm
Get ready to unleash your inner superhero! Join Eden, a teen with TS, for a fun and interactive presentation designed just for kids. We'll learn ways to build confidence through writing affirmations and striking powerful superhero poses. Discover how to manage nerves with creative techniques and leave feeling empowered and ready to take on the world. It's a brand-new way to celebrate your strengths and learn amazing skills. Let's have fun and build confidence together!
Eden Shaw
Eden is a 16 years old and has TS. She is passionate about helping children and teens feel confident in themselves and capable of thriving regardless of the challenges that accompany having a Tic Disorder. Eden was diagnosed with TS at age 5 and has learned to overcome challenges with fun activities and mindfulness exercises. She enjoys public speaking, meeting new people, and sharing her story.
As a 2025 TAA Youth Ambassador, Eden visited Capitol Hill with her peers and advocated to Senator Van Hollen and Representative Raskin for TAA public policy priorities. She is a sophomore at Winston Churchill High School where she is class president. She is organized, a strong communicator and a positive leader. She is also a three-sport student athlete (field hockey, winter track, and spring track), loves to stay active, and bake treats. Her additional hobbies include drawing, crafting, volunteering, and spending time with friends and family. Eden is looking forward to sharing her favorite techniques with TIC-CON attendees and helping everyone become a superhero in their daily lives!
June 21, 2025 12:00 pm
to
01:00 pm
In this empowering and interactive session designed for youth, you'll learn powerful and practical tools to identify what YOU need, and to reclaim your place to shine brightly as your authentic self, while navigating life with TS. You'll discover how to understand and communicate your unique needs, develop clear and confident communications, learn to stand tall, build self-esteem and resilience, and live life to the fullest!
Paul DePompo, PsyD, ABPP
Dr. Paul DePompo is a board-certified clinical psychologist specializing in cognitive-behavioral therapy (CBT). He is the co-author of Tic’d: A Child’s Guide to Managing Tics and How I Kicked My Tics. As a sought-after speaker on TS, he has presented worldwide, including at the WCCBT in Seoul, South Korea.
Dr. DePompo is the founder of the CBT Institute of Southern California in Newport Beach. He is a regular media contributor, appearing in The Huffington Post, NPR, and AZTV to discuss relationships and human behavior. Additionally, he consults for Hollywood studios and shares expert advice on TS via Instagram. Learn more about Dr. DePompo at cbtiosocal.com.
Cassandra Moore, LMFT
Cassandra Moore, LMFT, is a licensed marriage and family therapist and the co-author of Tic’d: A Child’s Guide to Defeating Tics. She specializes in Cognitive Behavioral Therapy (CBT) and Parent-Child Interaction Therapy (PCIT), providing individual, family, and group therapy for ADHD, mood disorders, and anxiety disorders.
Cassandra earned dual bachelor of arts degrees in psychology and social behavior from the University of California, Irvine, and a master’s in clinical psychology with a focus on marital and family therapy from The Chicago School of Professional Psychology.
In addition to her clinical work, she consults with organizations to provide mental health education.
June 21, 2025 02:00 pm
to
03:00 pm
First, a young person with TS shares their experience navigating school using Comprehensive Behavioral Intervention for Tics (CBIT) and advocating for themselves - even in the middle school cafeteria.
Then, participants put the ACT in this interACTive session by role playing vignettes from the presenter's book What Makes Me Tic. This resource is a classroom-and-clinic-ready tool to help youth feel socially validated, gain empathy, and perspective.
Raeha Richman
Raeha Richman is a 2024 graduate of Severn School in Maryland and currently studies anthropology at the University of Maryland, College Park. She received a 2023-2024 Van Eney Fellowship to develop a literary character, a middle-school-aged girl with TS. Her character’s story will be presented in a forthcoming book, What Makes Me Tic.
TS has shaped Richman’s own journey. Her resilience has been recognized by her peers with the Severn School Spirit Award (2020), by her teachers with the Severn School Citizenship Award (2020), and by her community with the Anne Arundel County Mental Health Alliance M.E.G.A. Award (2023), City of Annapolis George Trotter Youth Award (2022), and County Executive Youth Award (2022). She overcame tics to win an elected office at Maryland Girls State (2023).
Richman is also an avid musician who didn’t let TS stop her from playing the flute at venues including Carnegie Hall and the U.S. Naval Academy Chapel. You can often see her busking in her hometown of Annapolis, Maryland.
June 21, 2025 11:00 am
to
12:00 pm
This session will focus on defining advocacy and exploring the means and uses of advocacy in our daily lives. The aim is not to view advocacy as a massive undertaking, but rather as something that every person is capable of doing. Participants will create a personal elevator pitch to advocate for themselves, reflecting on past experiences to view themselves as an advocate who navigates life with tics with strength and confidence.
Maya Rao
Maya Rao is a student at the University of Maryland at College Park. She currently works with preschool and elementary school-aged children while studying special education.
Maya has been advocating for TS since she was diagnosed in middle school and has enjoyed sharing her story in the hopes of helping others. She is active in the TAA as a Rising Leader and serves as the Social Media Chair for TAAMAC.
Maya enjoys reading, writing poetry, playing the violin, and spending time with her family and cats.
Thalia Schug, OTD, OTR/L
Thaila Schug holds a clinical doctorate in occupational therapy from the University of Florida and primarily works with children, teens, and young adults in Georgia as an outpatient pediatric therapist. She is one of the few occupational therapists certified in the Comprehensive Behavioral Intervention for Tics (CBIT) program and has been involved with the Tourette Association of America through mentorship and training since 2023.
Thaila has previously presented on the topic of TS for emerging practitioners at the AOTA National Conference in 2024. She is currently working on a qualitative research paper regarding an occupation-based assessment utilized by CBIT-trained OTs.
Outside of work, Thaila loves Disney, traveling, playing with her dog, and writing children's books for fun.
Lily Steinhoff
Lily Steinhoff is a hospitality student at St. Clair College. She has been advocating with the TAA for four years, beginning as a Youth Ambassador and, just this year, being trained as a Rising Leader.
Lily hopes to one day work with the Tourette Association in Canada to create a program similar to the TAA.
June 21, 2025 12:00 pm
to
01:00 pm
These presenters are brothers with TS - Lex is in high school, and Andrew is a neuroscience major at Brown University. They will share the importance of connection to family and to others with TS using their own difficult stories to highlight how humor has helped them cope. Lex and Andrew aim to reduce the shame that is often associated with a TS diagnosis.
Lex Fogarty
Lex Fogarty is a sophomore at Rye High School in Rye, NY. He has been a TAA Ambassador for 6 years and continues to present to students and faculty on TS. Lex participates in track, does lights and sound for school shows, and is currently pursuing his ridership through the local chapter of EMS.
Andrew Fogarty
Andrew Fogarty is a junior at Brown University majoring in neuroscience. He was a TAA Youth Ambassador for 9 years and is now a TAA Rising Leader. Andrew is active on campus, participating in the Mediation Community, Sports Medicine Society, and intramural soccer.
June 21, 2025 02:00 pm
to
03:00 pm
This session focuses on empowering people with TS using words and mindset. We will discuss the use of the word 'can't' in discriminatory and biased settings and how flipping the viewpoint to what people with TS are capable of is extremely powerful. Participants will have the opportunity to consider their own goals for what they can do, the resilience they already have, and can work to overcome any obstacles in achieving these goals.
Maya Rao
Maya Rao is a student at the University of Maryland at College Park. She currently works with preschool and elementary school-aged children while studying special education.
Maya has been advocating for TS since she was diagnosed in middle school and has enjoyed sharing her story in the hopes of helping others. She is active in the TAA as a Rising Leader and serves as the Social Media Chair for TAAMAC.
Maya enjoys reading, writing poetry, playing the violin, and spending time with her family and cats.
Thalia Schug, OTD, OTR/L
Thaila Schug holds a clinical doctorate in occupational therapy from the University of Florida and primarily works with children, teens, and young adults in Georgia as an outpatient pediatric therapist. She is one of the few occupational therapists certified in the Comprehensive Behavioral Intervention for Tics (CBIT) program and has been involved with the Tourette Association of America through mentorship and training since 2023.
Thaila has previously presented on the topic of TS for emerging practitioners at the AOTA National Conference in 2024. She is currently working on a qualitative research paper regarding an occupation-based assessment utilized by CBIT-trained OTs.
Outside of work, Thaila loves Disney, traveling, playing with her dog, and writing children's books for fun.
June 21, 2025 03:00 pm
to
04:00 pm
Led by an adult with TS, this interactive session for teens with TS will inspire them to embrace their unique identities through self-discovery, self-acceptance, and self-esteem-building activities like art and storytelling. It concludes with Yamil Alvarado's inspiring journey, offering tools and insights for living with confidence, strength, and resilience.
Tanya Alvarado
Tanya Alvarado is a licensed mental health counselor, owner, and qualified supervisor at A New Path Counseling, with over 14 years of experience. She specializes in working with neurodivergent kids, teens, young adults, and adults, helping them embrace their individuality and find radical self-acceptance. With both personal and professional experience, Tanya’s passion stems from loved ones in her family being diagnosed with TS. She has made it her purpose and passion to support the TS community in Florida. When not in session, she enjoys hot coffee, exercising, and spending time with her husband and two spirited boys.
Yamil Alvarado
Yamil Alvarado is an adult with TS. He is also an operations manager for a benefits administration company. Beyond his professional responsibilities, Yamil is a passionate leader, heading the TS/Tics Support Group for families in Florida, where his warm, kind-hearted, and funny personality makes everyone feel accepted and supported.
Yamil’s heart for helping others and his passion for community-building make him an inspiring figure for everyone he meets. His lived experience with TS drives his mission to empower and encourage others affected by TS. He is fluent in both English and Spanish, with hopes to bring more awareness, support, and resources to Spanish-speaking communities. He is married to Tanya, and they have two amazing boys.
June 22, 2025 11:00 am
to
12:00 pm
Parenting is challenging, and it doesn't come with an instruction manual. When a child has TS, another Tic Disorder, or another form of neurodivergence, these challenges can become even more intense. Thankfully, modern psychology has identified tools to help parents and guardians raise healthy, happy, and resilient children - neurodivergent and neurotypical alike. This presentation pulls together core concepts and strategies from the best evidence-based parenting models and will help parents and guardians use them specifically for their children with TS.
Jeremy Lichtman, Psy.D
Jeremy Lichtman, PsyD, is a licensed psychologist, director and founder at Central Therapy, and director of the CAPS training practicum at the Graduate School of Applied and Professional Psychology (GSAPP) at Rutgers University. Dr. Lichtman specializes in the evaluation and treatment of youth, adolescents, and adults with severe emotional dysregulation, self-injuring behaviors, suicidal ideation, Post-Traumatic Stress Disorder, TS, anxiety disorders, OCD, and trichotillomania (hairpulling). Dr. Lichtman is certified in CBIT and in MDMA-assisted therapy for PTSD.
In addition to providing individual counseling to children, adolescents, and adults, Dr. Lichtman has facilitated groups on topics such as DBT skills, social skills, and effective parenting techniques. He has also devoted extensive time to developing and presenting workshops and trainings for school personnel, medical providers, and mental health care providers. An expert in the treatment of TS, Dr. Lichtman is a frequent presenter for the New Jersey Center for Tourette Syndrome and has served as a consultant and member of the medical review committee for the organization’s annual Tim Howard Leadership Academy.
Jeff Lichtman, PhD
Dr. Jeff Lichtman is the director of student mental health services and Lucille Weidman director and professor of graduate Jewish education and special education at Touro University. As International Director Emeritus of Yachad, the National Jewish Council for Disabilities, Jeff is well-known for his more than 30 years of visionary leadership. He grew Yachad into a world-wide force for inclusion and founded the IVDU Schools, which provide innovative and individualized education to children with a wide range of learning needs.
A psychologist with many years of experience in both regular and special education settings, Dr. Lichtman's areas of expertise include individual and group counseling, school and organizational leadership, social skills development, and teacher training.
June 22, 2025 12:00 pm
to
01:00 pm
Discover the therapeutic power of music for Tic Disorders! This presentation explores how music enhances focus and regulates mood. Witness live performances by musicians with TS who demonstrate how playing instruments like guitar and drums builds confidence and fosters purpose. We'll showcase diverse genres from rock to gaming soundtracks. Learn to use music as a tool for emotional well-being. This innovative approach offers fresh insight into managing tic symptoms through the transformative power of musical expression.
Gail Reiner, DNP, FNP-C, MA
Gail Reiner joined UC San Diego Department of Neurosciences in 2009 as Family Nurse Practitioner with a Doctorate in Nursing from the University of San Diego participating in mitochondrial medicine, neonatal seizures, tic disorders, and Smith-Magenis Syndrome (SMS) research and clinical practice with Dr. Richard Haas. She is certified to provide Comprehensive Behavior Intervention for Tics (CBIT). Gail has given invited talks for SMS families for 12 years with Dr. Ann Smith (NIHGR/NIH) in the US, England and Australia and has participated in humanitarian projects in Tanzania, Zimbabwe, Honduras, Mexico and Estonia. She also volunteers as a brown-card chaplain at Donovan State Prison.
June 22, 2025 01:00 pm
to
02:00 pm
Tics are an important part of TS. However, less obvious but sometimes just as impactful, are co-occurring conditions such as Obsessive Compulsive Disorder (OCD) and Attention Deficit Hyperactivity Disorder (ADHD) that people with TS may experience. The TS “iceberg” visual underscores how so much of what TS encompasses is hidden from view, but important nonetheless. The presenter will speak about his experiences with OCD, ADHD, and other conditions that accompany his TS, while providing helpful information that he’s learned along the way.
Lev Katz
Lev Katz is a freshman at Bates College in Maine, originally from the Bronx, New York. He is double majoring in classics and pre-health with a focus on mental health, driven by a passion for understanding the mind and advocating for mental well-being. Lev is also a member of the youth council at the Child Mind Institute, an organization dedicated to helping children and families affected by mental health challenges. In his free time, he enjoys cooking, experimenting with different recipes, and gardening. Lev is also fascinated by history, particularly ancient civilizations, and enjoys learning about their cultures and contributions.
June 22, 2025 11:00 am
to
12:00 pm
TicVision is a free first-of-its-kind digital tool that empowers individuals with TS through tic tracking, personalized recommendations, and secure clinician communication. Born from the presenter's personal experiences with TS since age 12, this session shares firsthand insights and innovative, data-driven methods that he would have loved to have since the beginning of his TS journey. Discover how this mobile app translates tic data into actionable insights, helping individuals understand their triggers and enabling targeted treatment strategies. Explore practical tools and compelling research findings that are reshaping TS management.
Arhaan Gupta
Arhaan Gupta is a 21-year-old college student from Gurgaon, India. He studies psychology and entrepreneurship at Ashoka University, and is currently in his penultimate year. He has a diverse set of academic and personal interests, including human-computer interaction, product design, technology, psychology, football, and food.
Arhaan was diagnosed with TS at the age of 12. The sudden onset of tics left him scared, confused, frustrated, and in pain. Not even a minute would go by without a tic occurring. He was later admitted to the hospital for IVIG treatment, and while his tics improved slightly, they remained severe for years. A couple of years ago, his symptoms began to significantly improve. Motivated by his journey, he decided to channel his hardships into something meaningful: TicVision — a tool I wish I had growing up.
After sharing TicVision on Reddit and receiving an overwhelmingly positive response, Arhaan became determined to develop it into a resource that can help every person with tics. It has long been a dream of his to create something impactful for others in his situation, and he is committed to turning that dream into reality.
Aamer Jalan
Aamer Jalaan is a 21-year-old student from New Delhi, India, studying computer science and entrepreneurship at Ashoka University. With a passion for problem-solving, Aamer is committed to using technology to create real-world impact and improve lives. He embraces every challenge as an opportunity to learn and innovate, striving to develop solutions that serve communities and drive positive change.
Aanish Sachdev
Aanish Sachdev is a junior at the University of Southern California (USC) in Los Angeles, majoring in computer science with a minor in cinematic arts. He is passionate about building innovative software solutions and has experience in full-stack development, gained through several coding projects. Aanish's background in both technology and film fosters a unique blend of creativity and technical expertise, allowing him to approach product development with a balance of functionality and storytelling. Whether designing software or crafting user experiences, Aanish applies his interdisciplinary skills to create engaging and impactful digital products.
June 22, 2025 12:00 pm
to
01:00 pm
This panel is composed of three medical students and a thoracic surgeon, all of whom have TS. They will discuss how living with TS has influenced their journeys into medicine, including some of the barriers for those with TS and personal strategies to persevere through challenges. To further illustrate the reality of navigating professional, academic, social, and personal circumstances, the panel will share anecdotes and key takeaways from their experiences.
Jeremy Rosenbaum
Jeremy Rosenbaum is a third-year medical student with TS at the Keck School of Medicine of USC. Prior to attending medical school, he graduated cum laude from California State University, Chico with a B.S. in exercise physiology and a minor in chemistry. As a member of Chico’s honors program, Jeremy conducted research investigating the influence and mechanisms of TS co-occurring conditions on severe bouts of tics, and presented this research at TIC-CON23. Collaborating with his peers in the medical and TS community, Jeremy presented at TIC-CON24, conducted a three-part webinar series with the TAA and CDC, and regularly gives health care career talks for local school children. Jeremy aspires to become a cardiothoracic surgeon and is currently conducting research on the impact of underlying psychiatric co-occurring conditions on treatment and health outcomes for people undergoing cancer surgery.
Michael Chichioco
Michael Chichioco is a fourth-year medical student with TS at the University of California San Francisco (UCSF). Michael graduated from Northeastern University with a B.S. in biochemistry and a minor in psychology. Michael has been involved with the TAA for many years as a Youth Ambassador (2014) and Rising Leader (2019). He is a passionate advocate for TS and has presented at numerous venues such as KQED Radio, TEDx, various elementary/middle schools and universities across the country.
Michael is interested in the field of pediatric anesthesiology and in his career hopes to continue addressing health disparities for individuals with TS and disabilities. Through his career and through public speaking/advocacy, he strives to encourage individuals with TS and disabilities to embrace their differences and see them as a strength.
Kevin Liu
Kevin Liu is a third-year medical student with TS at the Keck School of Medicine of USC. As a first-generation Asian-American growing up in upstate New York, he has had unique experiences adapting to the challenges posed by TS while navigating environments created by prevalent interpersonal racism. Kevin graduated summa cum laude from the University of Southern California with a B.S. in biochemistry and a B.A. in philosophy, and he is currently pursuing a M.D. from the Keck School of Medicine at USC. Kevin aspires to become a neurosurgeon and has conducted clinical research on neurosurgical techniques used to treat psychological disorders, such as depression and OCD.
Wilson Tsai, MD
Dr. Wilson Tsai is a board- certified thoracic surgeon and the former director of the Thoracic Surgical Program at John Muir Health. He graduated from the University of Medicine and Dentistry of New Jersey in 1999, and his passion for medicine was shaped early on by his desire to help patients battling cancer, inspired by his grandparents' struggles with the disease.
Dr. Tsai completed his general surgery training at Robert Wood Johnson Hospital and went onto complete prestigious fellowships at the National Cancer Institute, the University of Pittsburgh Medical Center, and Memorial Sloan Kettering Cancer Center. He is a recognized leader in minimally invasive thoracic surgery, having established specialized programs for treating both benign and malignant esophageal and lung diseases.
While TS has contributed to hardships along his path into medicine, it also provided him with a motivation to not be defined by the diagnosis. Dr. Tsai found stillness in the operating room and describes his diagnosis as a blessing. Outside of the operating room, Dr. Tsai is a black belt in jiu-jitsu, a published author, a cutting-edge researcher, and an active supporter for the next generation of physicians with TS.
June 22, 2025 01:00 pm
to
02:00 pm
Occupational therapists can have a specialty focus for those with tics and Tic Disorders. This is called Comprehensive Behavioral Intervention for Tics, or CBIT. CBIT works from an OT perspective in that the practitioners work with clients of all ages and evaluate them to determine what type of Tic Disorder they have through the Yale Global Tic Severity Scale (YGTSS) and then work to reduce their personally undesired tic behaviors through the reduction of premonitory urges and movements.
Jen Gordon, OTD, OTR/L
Dr. Jen Gordon, OTD, OTR/L, is an occupational therapist with degrees from the University at Buffalo (NY) and Boston University (MA). She is the sole proprietor of her private practice in Buffalo, NY, where she works with youth aged zero to twenty-one who have developmental delays such as Autism, Attention Deficit Hyperactivity Disorder, Sensory Processing Disorder, Global Delay, and feeding concerns.
She bases the theme of her work around the value of sensory integration in promoting the utmost success in a child during sessions and beyond, into daily life. Dr. Gordon also works with clientele with Tic Disorders from a CBIT perspective, where she brings her unique set of skills as someone who has TS herself to relate to the client and help them from a ground-up perspective.
June 22, 2025 12:00 pm
to
01:00 pm
This two-part workshop will help participants understand the complex nature of TS and how it manifests in the classroom, the school yard, and other settings. It will reflect on the different perspectives of the student with TS, their peers, and teachers considered within the larger context of the school system and offer strategies for how school leaders, teachers, and parents can navigate the challenges presented so that ALL students and staff can experience success.
Jeff Lichtman, PhD
Dr. Jeff Lichtman is the director of student mental health services and Lucille Weidman director and professor of graduate Jewish education and special education at Touro University. As International Director Emeritus of Yachad, the National Jewish Council for Disabilities, Jeff is well-known for his more than 30 years of visionary leadership. He grew Yachad into a world-wide force for inclusion and founded the IVDU Schools, which provide innovative and individualized education to children with a wide range of learning needs.
A psychologist with many years of experience in both regular and special education settings, Dr. Lichtman's areas of expertise include individual and group counseling, school and organizational leadership, social skills development, and teacher training.
June 22, 2025 01:00 pm
to
02:00 pm
In Part 2, we will discuss a case study and explore paths to success. Following the case study discussion, educators and parents can present their own questions for discussion and problem solving. You are encouraged to attend both part one and two of this workshop to gain the best understanding of the subject, but attendees are also welcome to join only this session.
Jeff Lichtman, PhD
Dr. Jeff Lichtman is the director of student mental health services and Lucille Weidman director and professor of graduate Jewish education and special education at Touro University. As International Director Emeritus of Yachad, the National Jewish Council for Disabilities, Jeff is well-known for his more than 30 years of visionary leadership. He grew Yachad into a world-wide force for inclusion and founded the IVDU Schools, which provide innovative and individualized education to children with a wide range of learning needs.
A psychologist with many years of experience in both regular and special education settings, Dr. Lichtman's areas of expertise include individual and group counseling, school and organizational leadership, social skills development, and teacher training.
June 22, 2025 11:00 am
to
12:00 pm
Imagine holding onto a buoy in the middle of a lake with two options: raise your arm and give up or compose yourself and just keep swimming. What would you do? That’s exactly where the presenter found themself after starting Ticcing Away the Miles -i an effort to raise awareness for TS by doing triathlons. What started as sniffing at age nine has turned into a journey spanning over 30 years.. And today, the presenter can honestly say: “I like the person I’ve become.”
Brian Burns
Brian was diagnosed with TS at age 11 and has been living with constant tics for the past 33 years. He has an undergraduate degree in middle childhood education from Cleveland State University, a master's degree in educational technology from Arizona State University and has worked in educational settings for 17 years.
Britney Wolf
Britney Wolf is the manager of development and special events at the TAA. She was diagnosed with TS at seven years old and has been passionately spreading awareness and education about TS ever since. She advocates via social media and speaks at conferences and businesses throughout the year about disability awareness and accessibility with a direct correlation to TS. Britney has organized multiple fundraising events in the past; raising thousands of dollars for TS research and development.
Britney is a graduate of Kent State University with a Bachelor of Arts in English and is an author of the book Ticcing My Way Through Life where she brings readers into her life with TS. Currently, Britney is working on her second book.
June 22, 2025 11:00 am
to
12:00 pm
Join Grammy Award Winner, Cory Hills, for a unique performance of captivating percussive stories, showcasing the power of rhythm and sound in storytelling. This all-ages program will feature a short performance, bad jokes, information on folktales and instruments, more bad jokes, and a Q&A.
Cory Hills
Multi-percussionist, composer, and Grammy award-winning artist Cory Hills thrives on breaking down musical barriers through creative, interdisciplinary projects. He has received degrees from Northwestern University, Queensland Conservatorium, and the University of Kansas, and he was awarded a research fellowship to Institute Fabrica. Currently, Hills is an active performer, composer, and recording artist in Los Angeles, as well as a member of the Los Angeles Percussion Quartet.
An advocate of new music, Hills has individually commissioned and premiered over 150 new works for percussion. He has given solo and chamber recitals across Europe, Australia, New Zealand, The United States, Mexico, and China. An advocate for percussion as an artistic discipline, Hills has been the artist-in-residence at Rocky Mountain National Park, a fellow at the OMI international artist’s colony, artist-in-residence with Eighth Blackbird in Chicago, and the inaugural resident for an arts in social practice fellowship through the National Endowment of the Arts and the state of Colorado.
Percussive Storytelling, a program that brings classical music and storytelling to kids in low-income communities, was launched by Hills while a fellow at Institute Fabrica. The program recently marked its 1,300th performance and has reached more than 250,000 children in ten countries. Hills has released two award-winning albums (The Lost Bicycle, Drum Factory), and three children’s books (The Lost Bicycle, Beatrice and the POGs, Beatrice and the Search for the Orb). Through Percussive Storytelling, Hills was named as the inaugural Gretsch Fellow in Children’s Music at the Fred Rogers Center for 2021-2022, as well as a recipient of a 2022 Individual Artist Fellowship through the California Arts Commission.
Cory and his son - who is a 2025 TAA Jr. Youth Ambassador - both live with TS. This year, they advocated together on Capitol Hill during Tourette National Advocacy Day.
June 22, 2025 11:00 am
to
12:00 pm
TS is often misunderstood, especially in Asian families and cultures where it's not really talked about. In this session, you'll hear about one individual's journey of learning to accept their tics, overcome anxiety, and find confidence through sports, research, and advocacy. From joining a brain study to speaking at Stanford University, the presenter has learned that talking about TS can change how people see it. "The more we share the more we help others understand." Let's talk about TS.
Lawrence Sakata
Lawrence is a 9th grader at Cathedral Catholic High School, where his favorite subjects are geometry and biology. In high school, he rows for the freshman team and has developed a deep passion for the sport. Through rowing, he has made many friends and learned valuable life skills such as discipline, hard work, and teamwork.
Lawrence is passionate about foreign cultures. He attended a Mandarin immersion elementary school and has been studying Japanese since kindergarten. Last summer, he had the opportunity to live with a host family in Tokyo. Lawrence loves Japanese cuisine, especially BBQ and ramen.
In addition to rowing, Lawrence enjoys golf. He was one of sixty kids invited by the Tiger Woods Foundation to play in the TGR Invitational at Pebble Beach. He came in 2nd place and received a medal for achieving a hole-in-one.
Lawrence enjoys playing video games, watching YouTube videos, and practicing hip-hop dancing. He also has TS, and he is eager to learn more about it. For his high school biology project, Lawrence hopes to raise awareness about TS. He has participated in Comprehensive Behavioral Intervention for Tics (CBIT) and was a guest speaker for the Stanford Neurodiversity Project – Network for K-12 Neurodiversity Education & Advocacy (NNEA).
Michael Chichioco
Michael Chichioco is a fourth-year medical student with TS at the University of California San Francisco (UCSF). Michael graduated from Northeastern University with a B.S. in biochemistry and a minor in psychology. Michael has been involved with the TAA for many years as a Youth Ambassador (2014) and Rising Leader (2019). He is a passionate advocate for TS and has presented at numerous venues such as KQED Radio, TEDx, various elementary/middle schools and universities across the country.
Michael is interested in the field of pediatric anesthesiology and in his career hopes to continue addressing health disparities for individuals with TS and disabilities. Through his career and through public speaking/advocacy, he strives to encourage individuals with TS and disabilities to embrace their differences and see them as a strength.
June 22, 2025 12:00 pm
to
01:00 pm
This session chronicles the life of someone with TS and how to manage all the challenges that come with it. Learn to build healthy relationships with family, friends, significant others, and yourself, as well as how to cope with TS in school and beyond. Gain insights into how to advocate for yourself in school with 504s and IEPs, and ways to manage TS in a healthy way using the proper tools and resources. Don't just survive with TS, thrive!
Ellie Carroll
Ellie Carroll is a dedicated advocate, influencer, and singer who actively works to raise awareness and support for the TS community. Diagnosed with TS, Ellie uses her platform to share her experiences, educate others, and challenge misconceptions about the condition. As an advocate, Ellie is deeply involved in initiatives that support individuals with TS. She participates in TAA Advocacy Day in D.C. annually, where she works to push for policy changes and increased awareness of TS - she was team leader for 2025.
Ellie’s commitment to advocacy is further reflected in her work with The Tourette’s CBIT Foundation, a nonprofit founded by her mother, Kathryn Carroll. The foundation helps provide financial assistance to individuals seeking Comprehensive Behavioral Intervention for Tics (CBIT), a therapy for managing TS symptoms. Ellie has been actively involved in events supporting the foundation’s mission.
Beyond advocacy, Ellie is a talented singer and social media influencer, using her online presence to connect with others, spread awareness, and inspire confidence in those navigating life with or without TS and other disabilities. Through her content, she emphasizes that TS does not define a person—it is just one part of a vibrant and fulfilling life. With her passion for advocacy, music, and community engagement, Ellie Carroll continues to be a powerful voice for the TS community, proving that individuals with TS can thrive and make a lasting impact.
Chloe Lee
Chloe Lee is a dedicated advocate for topics and organizations such as women's rights, TS, American Heart Association, Keeping America Beautiful, and many more. She is a trained TAA Youth Ambassador who completed her training in 2024 in D.C. She is currently a freshman in high school in Dallas, Texas.
Chloe spends her time volunteering, and training as an Air Force JROTC cadet. Many told her that she would not be able to participate in the corp due to her tics. She proved them very wrong by not only being in the corp but rising above her fellow cadets. She was the first freshman and female to be an Element Leader and won the first freshman cadet of the month. She's also on the ROTC Physical Team and Rifles Team, where she competes against schools across the region. She advocates for herself and others. She leads by example in showing that confidence and self-validation can take you very far in life. Chloe is an example of someone who doesn’t let her TS define her but instead defines her TS.
The conference is divided into two segments:
I look forward to going to this conference each year to be with our Tourette family - to learn from others and communicate things we have learned throughout our journey with TS.
I was so impressed (again) and am so grateful for this educational treasure trove!
I Love talking to other people with Tourettes.
Presenters were amazing, interactive and engaging. My teen loved it.
Wonderful presenters. Very engaging and natural speakers. I enjoyed the content and feel like I’m leaving with valuable information.
Just so happy to hear these stories and not feel so alone.
Lovely change of pace. Really enjoy hearing from researchers who have tics. It makes TAA conference so unique and why I always encourage my families to attend.
